I wanted to take a few minutes to share some cool things I’ve gotten to do in my 42+ years. Some of these are despite being born with Spina Bifida, but some of these opportunities are at least in part because I have Spina Bifida.
When you live with an obvious disability, especially one that is as misunderstood as Spina Bifida, it is easy to waffle between wanting to keep everything private and wanting to help people understand your life better. Every October, I debate whether or not I should participate in Spina Bifida Awareness month on social media. Do … Read More
When most kids get new braces, it involves a trip to the orthodontist. I did experience that, but in my world braces always meant contraptions on my legs to help me walk. When I went to being a full-time wheelchair user in my late teens/early 20s, I stopped wearing leg braces. To be perfectly … Read More
I remember when I was a little girl, I was interviewed for some local TV station’s show that I think was called Mike and Maddie. Or something like that. The segment was about local kids with Spina Bifida and if my memory serves correct, it was one of those “rah rah isn’t this cute handicapped … Read More