When you live with an obvious disability, especially one that is as misunderstood as Spina Bifida, it is easy to waffle between wanting to keep everything private and wanting to help people understand your life better. Every October, I debate whether or not I should participate in Spina Bifida Awareness month on social media. Do … Read More
Showing all posts in Chronic illness/disability
What I’ve learned since declaring myself an advocate
You may remember months ago before this pandemic business that I wrote a blog post talking about how I’ve learned (reluctantly) to call myself an advocate. My main focus is disability access and etiquette, but I also advocate for people of color by sharing their stories and concerns on my various platforms. This whole advocacy … Read More
When life doesn’t change much when the world shuts down
Most who know me are well aware that I’m an external processor. I need to talk things out. Not necessarily get advice (that’s usually not helpful). I just need to talk things out and hear the issues I’m battling outside of my own head. So why haven’t I been processing this COVID-19/Coronavirus thing? In a … Read More
The Reluctant Advocate
Ever since I was a teenager, I remember having peers tell me privately that they appreciated when I raised my hand to ask a clarifying question. Or to challenge something I had heard by asking questions of those in authority. They would tell me they had the same questions but were too scared to speak … Read More